Brewers Ball to benefit cystic fibrosis research
The 3rd Annual Brewer’s Ball benefitting the Cystic Fibrosis Foundation will take place Friday, Oct. 4, from 7 p.m. to Midnight, at the Hilton Garden Inn, Fargo.
“Give today for more tomorrows” is the national theme correlating with this year’s event, which will provide the perfect setting for an evening of unique, entertaining fun that will play a huge part in helping support a great worthwhile cause.
Serving as keynote speakers will be Dan and Annette Peterson of Fargo, whose 11-year-old son Jordan, has cystic fibrosis and underwent a successful double lung transplant a few months ago.
Guests will also enjoy the opportunity to sample a variety of unique microbrews from some of the area’s top bars and restaurants and samplings of gourmet pub food. The evening will also feature live entertainment and one of the region’s most unique silent auctions.
Cystic Fibrosis is one of the most common genetic diseases of children and adults in this country. It starts in infancy and affects various glands resulting in the secretion of thick mucus that blocks internal passages, including those of the lungs, causing respiratory infections.
Since the illness affects a very small patient population, approximately 30,000 individuals, it is considered an orphan disease so the federal government does not allocate funding for research. Consequently, monies raised at the event will be crucial to research for the Cystic Fibrosis Foundation. As with every fundraiser the CF Foundation produces nearly 90 cents of every dollar raised to fund research to cure cystic fibrosis, one of the most common genetic diseases of children and adults in this country.
Nikki and Chris Hahn of Casselton are thankful for every ounce of support received at such fundraisers as the Brewers Ball. They are the parents of a little girl named Logan, who has cystic fibrosis. Last year, Logan was one of a small percentage (6 percent) of those with the disease who started taking Kalydeco, a newly approved cystic fibrosis drug based on one’s genetic mutations.
“Our daughter, Logan, has had the wonderful benefit of getting on the newest drug that helps these kids and the next phase of the new trial for the rest of the population is just around the corner with funding,” Nikki stated. “All of these dollars count so much, the CF foundation year after year has been recognized for the best allocation of dollars towards research.”
Nikki said they first learned of the Cystic Fibrosis Foundation while they were in Denver with their newly diagnosed baby. “If it was not for the Foundation, there would have not been newborn screening and our daughter would have had to undergo months or years of suffering until the diagnosis was made. If it was not for the foundation we would not have had the help with finding our hospital and the best care we can get for our daughter. They have provided contacts and opportunities to network and meet others through Great Strides (another CF program). If there are any questions with money, medications, doctors, treatments, you are able to get help or answers right away. They fight for these kids, look at the development with the lung transplants, and help lobby with the no clause for genetic conditions.”
Nikki added that the commitment of those involved with supporting cystic fibrosis-based fundraisers is sincere and straight-forward – “to get this cured so we can be off to the next thing we can help with.”
On that note, she encourages everyone to get their tickets and come out and support the Brewer’s Ball. “This is something unique and fun, offering great specialty beer and food all for a great cause!”
For a ticket price of $75, guests can taste the different craft beers and enjoy the all-you-can-eat pub food. Live music will be provided by the Gackle Trucker Band, and over 40 Silent Auction items will be featured.
The Cystic Fibrosis Foundation also continues to promote its Great Strides Walk in May, a fundraiser that has been a fixture for several years, also with the goal of raising money for research to cure cystic fibrosis and make a difference in the lives of all those with this disease.